Ethical Framework Developed for Genomic Testing Results

This article originally appeared here.
Share this content:
Ethical Framework Developed for Genomic Testing Results
Ethical Framework Developed for Genomic Testing Results

MONDAY, Sept. 14, 2015 (HealthDay News) -- An ethical framework has been developed to guide the professionally responsible disclosure of results of genomic sequencing in pediatric practice. The guidance is presented in a special article published online Sept. 14 in Pediatrics.

Noting that the results of genomic sequencing are distinctive because of their complexity and subsequent challenges of interpretation, Laurence B. McCullough, Ph.D., from Baylor College of Medicine in Houston, and colleagues discussed the need to prepare for the professionally responsible disclosure of results to parents and patients, including management of uncertain data.

The researchers described an ethical framework to guide and assess the professionally responsible disclosure of genomic sequencing results in pediatric practice. Three core concepts were included: the standard for the best interests of the child, parental surrogate decision-making, and pediatric assent. Pediatricians should explain the nature of the proposed test, its scope and complexity, the categories of results, and the concept of secondary or incidental findings when recommending sequencing.

"Pediatricians should obtain the informed permission of parents and the assent of mature adolescents about the scope of sequencing to be performed and the return of results," the authors write.

Abstract
Full Text (subscription or payment may be required)

Share this content:

is free, fast, and customized just for you!




Already a member?

Sign In Now »

Drug Lookup

Browse drugs by: BrandGenericDisease



Sign up for myCME e-newsletters




More in Home

Some California Mosquitoes Can Carry Zika Virus

Some California Mosquitoes Can Carry Zika Virus

Aedes aegypti mosquitoes found to transmit Zika virus

Periodontal Inflammation a Risk With Tongue Piercing

Periodontal Inflammation a Risk With Tongue Piercing

And, two young females with tongue piercings have deep lingual infrabony lesions, periodontitis

Risk of OD Highest for First Days of Opioid  Benzodiazepine Use

Risk of OD Highest for First Days of ...

Five-fold increased risk of opioid-related overdose during first 90 days of concurrent use

is free, fast, and customized just for you!




Already a member?

Sign In Now »